Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome")

On the recommendation of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) of the U.S. Department of Health and Human Services, the Centers for Disease Control and Prevention (CDC) and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs). The CPIR is pleased to provide web links to content in the pediatric section of the CDC’s ME/CFS website. The CDC’s website also currently features web links to CPIR and DOE resources that might be helpful to patients with ME/CFS and their families.

CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Page

Provides an overview of symptoms, treatment and effect on children with resources for school staff. Include Fact Sheets for Families included below. 

ME/CFS in Children Fact Sheets

This page contains printer-friendly fact sheets with information about ME/CFS for healthcare professionals, parents/guardians, and education professionals who care for adolescents and younger children

Center for Parent and Information Resources

U.S. Department of Health and Human Services, the CDC and the U.S. Department of Education (DOE) have collaborated to disseminate information about Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to all Parent Training and Information Centers (PTIs) with links to content in the pediatric section of the CDC’s ME/CFS website with resources that might be helpful to patients with ME/CFS and their families.

National Academies of Science, Engineering and Medicine ME-CFS Page

Provides ME/CFS Clinicians’ Guide, Key FactsDiagnostic-Criteria, Presentation and report below.

Institute of Medicine Report: Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Redefining an Illness Report Brief- Provides an overview of symptoms, treatment and multiple resources for additional learning (February 2015)

NYSDOH Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome") Page

Provides clinical information about diagnosis and treatment and multiple links for clinicians and community members in supporting those with this diagnosis. Updated May 2018

Page updated 12/16/19